- ELC patients need to be listened to and believed and the harms done to the health and well-being of their conditions needs to be taken seriously by health care and medical professionals.
- Training for all health, social care, and welfare professionals needs to include information about ELCs and be based on up-to-date research and the lived experiences of patients.
- Improvements to patient and public involvement frameworks to ensure that ELC patients play a role in research and policy decision making.
- Patient pathways and quality of care needs to include the provision of appropriate treatment or symptom management and support systems need improving to ensure people with ELC get the support they need to access welfare, social care, employment and education.
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